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February 02, 2011

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Catherine Shattuck

WOOHOO!

WarmSocks

Woo-hoo!! :D
That's great to hear.

Meg W

Have you tried the Enbrel Sureclick? I used to get huge bruises at my injection site with the old standard needle like the on in your picture. With the Sureclick I only see tiny bruises on occasion.

www.facebook.com/profile.php?id=728922186

Made me feel good to read this. Very happy for you.

Laurie

Excellent – so thrilled for you! Hope it all works out! :) L

sara

Thanks everyone! I appreciate the well-wishes!

Cathy

This is awesome news! Thanks so much for sharing it. As someone that desperately needs to hear RA success stories, I appreciate this a lot. Good luck!

Emily Henninger

This is so awesome! Your doctor sounds amazing. I need to get in there!
Congrats Sara.

Carla

Congrats! While I am so thankful for the medical miracles available to us, I say the fewer you need to use, the better. Fingers crossed that the lower dosage works amazingly well for you.

Stevi Wood

Good for you! I am pleased. I am one of those who has yet to find relief. We start Cimzia this weekend - my most recent failures include Enbrel and Humiria. A few years ago I failed to get any satisfaction from Remicade too. But again I am thrilled for you and I really hope it works for you.

Squirrel

Awesome news! I understand why you're reluctant to seem like you're 'boasting', but it's not like that at all. I've followed your blog for over a year and it's been a bright light which has made me think 'I can have a normal 20-something life despite this disease'. And so far I have been pretty lucky too. It's good to see successes, there are so many sad stories out there. Yay for you!

sara

Thanks everyone- I really do appreciate the support, especially from those of you who are having a hard time finding something that works. It's not always easy to be generous and happy for others when you are in the midst of pain.

Leela

I feel like giving up, Sara.
I'm only 21.
I can't do this...

sara

Hi Leela,
I had moments where I, too, felt like this was going to be unbearable and impossible, but three years later, it has gotten so much better, and I hear from people all the time who have been living with RA and living their lives for decades. I was very depressed after my diagnosis- if you have not done so already, I would strongly recommend going to therapy. I was already in therapy when I was diagnosed, and it helped me tremendously in moments like these. You aren't alone, and you can get through this.
Hang in there-
Sara

Leela

Thank you. Is joint deformation inevitable even with medication?

sara

Hi Leena,
The prognosis these days is much more optimistic, so I don't know that joint deformation is completely inevitable. If you are able to get on meds quickly that succeed in stopping or seriously slowing the progression of the disease, then that will help prevent any further joint damage. Everyone responds differently to different meds, and for those of us who get this in our 20's and 30's, we obviously have a long way to go, and some of these drugs are new enough that no one really knows yet how long they will work for each individual, but if you can keep the RA controlled, the damage to your joints will be minimal. This is definitely something to talk over more with your rheumatologist, though.
S

Sarah

Yay! I'm so happy for you. I totally relate to this post--I give myself MTX injections every week and I DREAD them. It's not that big of a deal, right, but the smell of the alcohol wipes is enough to just completely gross me out and make me nauseated before the MTX even kicks in. So--I am very glad to hear you will have fewer needles in your life :)

Martine

Congratulations!!

Margaret

That is awesome. I dread my 1x per week MTX shot. Like the previous post just seeing that nasty yellow vial makes me nauses now. I keep wishing my brother (he's a nurse) was around to inject me. To go from 2 to 1 is fabulous! Congrats.

T

If you don't mind me asking, what is your rheumatologists name? I am an undergrad at Hopkins, but I haven't been going to Hopkins Med because my insurance won't cover it. But, I'm getting desparate so I might have to start...

Kat

What great news Sara! I'm on Humira which is bi-monthly and I can't even imagine what it would be like to inject bi-weekly.

I just wanted to let you know about my experience so you have the information. I too, with the full support of my doctor, wanted to attempt to reduce my meds. I did it slowly, and at my lowest dose, I was on Humira every 6 weeks and three 2.5 mg metho pills a week. My problem? I reduced too far and had a relapse (I had been in medicated remission until then) in July 2010. So I'm back on the bi-monthly Humira (do you have that drug in the US? It's really done a lot for us here in Canada) and 7 metho pills. Sometimes I take the injection instead of the pills when I'm feeling particularly bad that week. Six months on and I am doing much better, and hopefully will be able to reduce my metho as it's the one that makes me feel the most nauseous. I'll ask at my appointment

Everyone is different and I'm hopeful that you will have no problems on your quest to be less dependent on medication. Good luck and congrats!

nancy taylor

good for you, Sara! I'm still struggling with the decision whether to even start Enbrel. Scared about side effects, but I also feel like crap every day. I don't know what a flare-up is since I have hurt every day (different joints)since RA joined my life. (do biologics make the pain and fatigue completely disappear?)thanks for sharing that non-injection drugs are in the pipeline.

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