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April 07, 2010

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Lisa Emrich

This post is timely as just two days ago an unexpected person contacted me (on facebook) because of posts I had written at MyRACentral. Because of using my real name, a cousin (who I haven't seen in maybe 20 years) is back in touch.

The reason isn't so exciting - she was just diagnosed with RA - but it's nice that I can support her at this stage of her journey. And together we can discuss our mothers and aunts who live with autoimmune diseases.

If I had chosen not to use my real name, she would have just seen a very familiar face and wondered why that adult looked like someone she should know.

This is the most personal the outreach of blogging has become. Family reunited over RA and information online.

Sandra Lee

Terrific round-up. Thanks! I look forward to reading all these posts.

P.S. Not to confuse anyone, I recently changed my blog name and url. My article is posted on both at my old address and my new one.

Vladimir Levin

Hi Sara, well done! And the picture you selected is aweseome! Did you make it yourself?

Helen

Great round-up, Sara! I'm looking forward to reading all of these and learning from them.

Cheryl

Thanks so much for this - I have RA as well, and while I have put a lot of thought into when to disclose the fact to employers, I've been really casual about it with friends/potential dating partners. The links you posted helped me see why it's probably something to put more thought into!

(aside note: I know you wrote about when to disclose it to a date - in 100% of my cases, I actually found that the dating partner saw it as a positive - like, "Wow, you are tough to have gone through that." So, for many, it will be seen as a strength, not a weakness, paradoxically!)

Michelle

I feel fortunate enough to have been able to tell my employer, because she also has RA, and has been a great resource and source of information and understanding.

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