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January 09, 2010

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This window into your thoughts reveals how strong you are. In you, RA has a foe it cannot conquer.

WarmSocks

Excellent writing, capturing the emotional impact of early RA.

I'm starting to feel really optimistic that creating awareness can make it easier to deal with this disease.

Amanda

Your journal entries sound a lot like what I was thinking too! I know I can't go back and make it easier for me then but knowing we can make it easier for others now helps!

millicent

You've come a long way, Baby!

jodi

wow, sara, your journal entries really sum up how sad and alone we all feel at the beginning of our time with RA. i remember having such similar feelings and being so depressed. i am in such a better place now, thanks in part to you & your blog. thank you so much for doing what you do. xoxo

Kat

"I can't ever not have RA now that I have it."

I think this was one of the hardest things for me to overcome. When I was waiting for a diagnosis, I was hoping it wasn't RA but rather something that could be cured.

It's tough to realize that this is NEVER going to change, it's tough to not let it define you moving forward. It blows my mind that I've been living with this for two years now. I am only 26, so god willing, I may live with this for another 50 years (and I thought two years was hard enough).

But, because you have the disease doesn't mean you have to LIVE with it. I think that's an important realization for those just diagnosed.

Mandy

Thanks for this - you have come so far! I am going through a lot of the early acceptance difficulties with my RA so thanks for airing your feelings because it makes me feel less solo. After using a ChiliPad to help with my RA symptoms I decided to work with ChiliTechnology (http://www.chilitechnology.com) to promote it. The ChiliPad is a mattress pad that cools (or heats) any bed. They come in all sizes, they work using water, and they're small and efficient. I used to take sleeping pills because the pain in my hips would keep me up at night. After playing around with the temperature I finally found a way to sleep through the night: heating up the bed a bit and then setting the timer to cool it down in the few hours before dawn is what works for me.

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