What, because having RA isn't enough?

(Spoiler alert: Don't worry, I'm fine. Note to male family members: maybe don't read this one...)

Over the last two years, I've had the pleasure of experiencing a range of different medical tests and procedures, including X-rays, MRI's, bone density scans, ekocardiograms, peripheral vision tests, and more.  If I've learned anything through my adventures in Doctorland, it's that you pretty much can't go see a doctor without having some kind of test be ordered. Between having RA, a heart murmur and migraines, I thought I had most of them covered, but this past week, I got to scratch another superfun procedure off the list: a breast ultrasound.

About a month ago, I noticed a denser-than-usual mass in my right breast.  It didn't feel like a lump exactly, and truth be told, I didn't feel worried about it, but given that I take freaky drugs that alter my immune system, I thought I should do the responsible, vigilant thing and bring it to the attention of my midwife.  At the appointment, she squunched and squished my breast around to try and see what was what.  Though she didn't feel a 'lump' per se, she did notice that this area felt particularly dense and, well, lumpy.  My breasts, for those of you who don't know (which I'm pretty sure is all of you!), tend to be of the lumpy variety in general, but the way she described it sounded pretty accurate to me: it's as if a bunch of lumps all decided to take a field trip to this one part of my right breast.  She wasn't alarmed at all, but she wanted me to go ahead and get an ultrasound just to see what it turned up. 

I calmly made my appointment for the ultrasound, but in all seriousness, didn't feel the least bit nervous, worried or scared- just responsible and cautious. I didn't even mention I was going to have this done to most of my friends.  The one I did happen to mention it to volunteered to come with me just in case.  I agreed, even though I really didn't think it would be necessary.  Then, with the appointment a few weeks away, I mostly forgot about it.

This past Tuesday, the appointment arrived. I decided to take the full day off from work since it was squat in the middle of the day, and I had no idea how long it would take.  I enjoyed a nice lazy morning, practiced some yoga, and then headed off to the address I'd written down on a post-it note.  As I walked down W. 15th street, I suddenly saw a huge sign appear with the words "COMPREHENSIVE CANCER CENTER' written on it.  I gulped and realized this is where I was headed. 

I don't know why I thought I was going to go to some small, nondescript little clinic, but that is what I had pictured in my head the whole time, not this giant, bustling, serious-looking center with the word CANCER looming ominously above it.  I stopped short of entering the huge sliding glass doors to wait for my friend to get there.  I suddenly felt intimidated and didn't want to go through those doors alone into a CANCER center. I was grateful my friend had insisted on coming with me.

Standing there watching others, most much older than me, come and go, it hit me that, though unlikely, there was a possibility that this might be something. A man who was missing one arm came out to wait for a car, and I couldn't help but feel uncomfortable and aware that I didn't want to be associated with anything that was happening 'in there.'  It all felt strange, and I wondered how the hell I had ended up standing outside a cancer center on such a nice, summer day.  In a flash, I felt myself getting really angry at even the thought of having cancer.  I mean, if I got cancer on top of having stupid rheumatoid arthritis all before the age of 31, I was going to be seriously pissed off at humanity, the gods and anyone else who got in my way.  It suddenly all felt very unfair and like it couldn't possibly really happen to me. But isn't that how I felt when I was waiting for my diagnosis of RA?

My friend arrived, and together we walked through the big sliding doors into the lobby.  Past the lobby through another pair of sliding doors, I could see doctors, nurses and patients rushing around like it was the set of ER or Grey's Anatomy.  I told the security person I was there for a breast ultrasound, and he pointed to a small door I hadn't noticed in the corner of the lobby, motioning that I was to go through that door.  I felt relieved that I was at least going to be able to bypass the big, scary epicenter of the Cancer Center. It seemed like a good sign.

I passed through the small door into a waiting room that looked fairly innocent and much more like what I had pictured.  I checked in and dealt with all the paperwork, then sat back and waited with my friend.  A little while later, I was called back and shown where to change into the lovely gown and wait.  There was another woman with me who seemed to know some of the nurses, and I wondered why.  I felt self-conscious, but figured at this point, there wasn't any point in getting all worked up.  A curly-haired technician came through the door and called my name.  She brought me into the room and had me explain and show her where the problem area was located. I laid back, topless once again (will anyone EVER buy me a drink first?) and she squirted cold jelly all over my boob. Awesome. 

She began to move the wand around, and I began to scrutinize every flicker of expression that glided across her face. Did that sudden creasing between her eyebrows mean she had seen something bad, or was she just squinting?  I couldn't really tell, but I was on pins and needles waiting for her to say something. Instead, she just kept rolling the wand over my breast and peering intently at the screen.  By now, I know enough to realize that this procedure is completely run of the mill and a routine part of her job, but when you are the one on the table, it's impossible not to read into everything and feel anxious and scared. When she paused the wand over the part of my breast where I had felt something, my heart began racing faster and faster the longer she kept it hovering over that spot.  Finally, she put the wand down, and said she didn't really see anything, but that she wanted the doctor to take a look.  She left the room, and I hung out, literally, and waited.

I had no idea if this doc was a man or a woman, so I felt very relieved when a woman walked through the door and introduced herself as Doctor whosit.  She examined the spot for a little while, and then handed down the verdict: 'We don't see anything problematic, but I'm going to recommend that you get a mammogram and see a breast surgeon.'

Wait. Was that good news or bad news?  I couldn't tell. I asked again to be sure, and she reiterated that they had, indeed, not seen anything 'problematic,' but she wouldn't say the words I really wanted her to say, which were, 'you're completely fine, and you definitely don't have cancer.' Instead, she explained that the next step was for me to check back in with my doctor to discuss the results, but that she was recommending the mammogram because I was 30, and it was a good idea in general to go ahead and get a baseline image.  Seeing the breast surgeon would be a good idea so that they could also examine me as a way of getting more information and another opinion.  Hmmph. It wasn't the total absolution I'd been looking for, but I felt adequately assured that I was fine, and that, big surprise, I just had to get some more tests done- so what else was new?

A little while later, I sailed out of the Cancer Center, hopefully never to return, and washed away my unease with tea and sandwiches at my favorite English tea spot, Tea & Sympathy, in the Village. One more test down, one more to go- that is, until I see another doctor. 

Comments

[millicent]

I'll 'swannee,' isn't there always something to gnaw at you? My own experience with this was very surreal--just entering the radiation/oncology center is enough to scare the sox off you. Going daily for 8 weeks turned into the opportunity for a nice visit with an old friend whose time was just after mine each day. Her situation was much more serious than mine (she's fine now, btw), and we were able to catch up on years of not seeing each other at dance recitals, etc.----plus the radiation techs & I became great buddies for that 8 weeks. Actually, they were life savers!

[Amanda]

I'm sure everything will be fine. All those drugs we're all on spook me too sometimes- I blame every little abnormality on them. Keep us posted!

[Becky]

Sending you good thoughts. I know since we take all of these RA drugs it keeps us on our toes. Keep us posted.

[liz]

Even though you gave the spoiler alert, I was so caught up in your descriptions, I was relieved to reach the part when the doc didn't see anything either. Yes RA, heart murmur and migraines is not only enough but too much.
Thanks for continuing to share and doing it with such style!

[claire]

Sara Sara Sara - you poor little thing! Like you said, as if the RA isn't enough to contend with! I am happy to know that they didn't see anything scary or worrysome right away, and really, as annoying as it may be, I'm glad you're going for a mammogram to make sure it's nothing serious. Hang in there and be strong - I'll say prayers! Keep us all updated :)

[Leigh Peltier]

Sara, I swear we must be going thru some kinda of supreme being test or whatever. I've had RA for 11+ years and have had some very strange health things happen since diagnosis. I had an episode of optic neuritis where i lost half the vision in one eye for a time. This is also a first symptom of MS so it was also a health scare that made RA seem insignificant. It's been 8 years and no MS yet, but there have been other strange health things that tell me I'm being tested and what did I do in a past life (or this one) that was so bad? At any rate, I've learned that it's best to just have the tests, see the experts, be thine own best advocate, read all I can and mostly enjoy my life because you never know - you could be hit by a bus tomorrow.

Sorry about your latest health scare - I am sure that it's just another bump in the road and you'll be wiser for the experience and learn to take them all in stride.

Leigh

[sara]

M-you definitely get a courage badge for going through your radiation courses. I'm so glad that is so long ago now!

Amanda and Becky-Thanks! I know, if it weren't for the freaky drugs, I don't know that I would be doing anything about it. But guess it is good that I am...

Liz-thanks as always for making me smile with your comments!

Claire-I will definitely keep everyone posted. Thanks for keeping me in your thoughts.

Leigh-wow, you said it!

[sur tom]

I am 26 and was diagnosed with RA a few months ago too.
I too have a non-cancerous lump in my breast. I wonder if they are related considering you too have one.

[AutoImmuneGirl]

Sara...OMG! I went through the SAME EXACT thing in September around the time I was referred to the rheumatologist. I had a normal mamo and abornaml ultrasound done where they found "a mass." I went back a week later to have a biopsy and I was scared shitless. At that point potentially have RA didn't seem that bad when faced with cancer. The biopsy came back clear and just chalked up as a cyst. I have to get another biopsy in March. So glad you're OK!