One of the things I love most is discovering a new blog by someone else writing about their life and experience with this bum disease called RA. When I was first diagnosed, I felt like I was on an island , drifting solo in a sea of confusion, pain and loneliness. Somehow, I kept striking out when I first googled endlessly online searching for people like me writing about RA. There were a few out there- but somehow, they weren't turning up at first. Once I started my own blog, I finally started stumbling across some others, and it was like taking a drink of water after wandering in a desert. I was sooo happy to find others in my boat who felt the same way!
Since then, almost a year has passed since I began this blog, and in that time, more and more of us have been putting our thoughts and feelings out there on the internet, making the web of voices sounding off about RA thicker and louder. Frankly, I couldn't be happier about it! The isolation that I first felt has slowly dissolved, and I now feel that there is a bold, vocal community of bloggers out there insisting that our experiences with RA be recognized. A few months ago, Miss Waxie came online with her awesome comic strips and searing observations; RA Guy has added a whole other perspective as well as some absolutely beautiful and profound posts on, well, life (with or without RA). And just today, I found Sadie writing frankly and bravely at Well, This Sucks about life as a very non-Single gal coping with RA and all its implications on her life as a professional woman and her relationship.
More and more, the presence of all of us who are living with this often misdiagnosed, misunderstood disease is becoming stronger and stronger. For a girl who could only find one book on the shelf the day after I got diagnosed, I feel a little bit like a kid in a candy store, and though I don't wish this disease on anyone, I'm so glad that more and more of us are putting our voices out there. To that end, I've put together a page of links that you can find on my navigation bar. It lists other sites that are resources for RA, blogs about RA, or blogs written by people with RA or other chronic conditions (and also a few other sites that I think are awesome for variety's sake). If there are other sites that you know of that need to be there, let me know, because I know I haven't captured them all. I'd love to amass an encyclopedia of RA sites so that we all know how to find each other, and so that others who are just beginning their journey with RA can find a link to everything they might be looking for.
Check it out, and let me know what's missing!