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June 14, 2008

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Catherine

"All this extra stuff ends up causing harm in the end, kind of like a 'too many cooks in the kitchen' kind of thing, where really, some of them just need to shut up and get the hell out so dinner can be made."

Totally laughed out loud at that. I know it's off topic for this blog, but AMEN!

SGRA

Yay! I'm glad you laughed out loud. may as well, and that is genuinely how i think about it.

Joint Pain Relief

great post, right to the point. well said !

Sara

JPR-thanks! Glad you found my blog!

Rabbit

I loved this quote from your article "In a way, it's kind of like your immune system (ok, my immune system) is having an identity crisis"--- I was having an identity crisis in a way when first told I had RA because I had no idea what RA was and my concept of RA was RA was arthritis in the hands only and my hands did not bother me so how could I have RA. It was my ankle killing me and I hurt all over and was extremely fatigued. I learned a lot fast like the rest of us when we are diagnosed with RA. I really like all your articles and I am so glad you started writing them; you really help.

sara

Rabbit- thank you so much. I think for most of it, that is our experience. I had only vaguely heard of RA before I got it. The learning curve is steep.

Tiffany Westrich

I think from now on I may tell people that my "immune system is over achieving". They will be soooooooooo jealous ;) .

LOVE IT!

Cheryl

Oh my gosh - I was speechless when I read that you describe your immune system as an "overachiever," because that's exactly how I do as well! I'm actually making a video right now about dancing with RA. Anyway, thank you so much for this down to earth, positive description of what RA is. It's such a welcome break from all the stark medical sites. I look forward to reading more of your posts!

Laura

Hi there!

I just stumbled upon your blog. I just wanted to mention that even though no one really knows what causes auto-immune conditions, you can potentially reverse everything or at least a lot by changing the way you think, what you do, what you eat etc. I was diagnosed with RA, and then Crohn's at 23, left college in a wheelchair, but now at 26 I'm completely off of all drugs and am living happily in Brooklyn- all because I never stopped asking questions and listening to my body, and for me the thing that changed my life the most was radically changing my diet, avoiding negative thoughts and practicing yoga (seriously).

Never give up! You're awesome for putting your story out there.

Amy Inarizona

Thank You for posting this, for having this blog and for putting RA into real terms. All my dr. did was tell me I had RA and to go see a specialist. So, in the 3 weeks it has taken to get into a specialist I have been left to figure it out on my own. Thank God for your blog.

sara

Hi Amy- glad you found me! I had to wait about three weeks for my rheumatologist appt as well, and my PCP also basically just said, yeah, you have RA, go see this person, so I remember how awful the wait in between felt. Some of the stuff you will read out there will make you feel completely hopeless, but there are so many people out there still living there lives around RA, so try not to despair. Make sure you trust your doctor- ask tons of questions, take notes and remember that you are in charge! Hang in there- S

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