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June 25, 2008

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Catherine

Coupla things to keep in mind.

re: flu shots, you probably should NOT get one -- ask your doctor. The immuno-suppressed usually are not allowed to.

re: fish oil -- buy pills, not the liquid. Trust me. It smells. Like rotting fish. Mmmm...I LOVED kissing Jeff right after he took his!!!

Not.

Jennifer

Good post covering the various treatments out there. I would suggest asking your doctor about trying different NSAIDs that might be a little easier on your tummy, since reducing inflammation will help a LOT with pain. Also a big YES on fish oil, I think it has made a big difference for me, and it has other health benefits too. Look for 'odorless' or 'enteric coated' to avoid fishy burps. And check with your RD about the flu shot; mine insisted I get one this year, since the risk of actually having the flu while your immune system is suppressed may be greater than the risk of the flu shot itself.

sara

Jennifer and Catherine-thanks for tips on which fish oils to buy-i definitely want to avoid fishy burps. that sounds putrid.

in terms of flu shots, i did discuss with my Rheumatologist, and they are highly recommended, basically required, for the immuno-supressed. Catherine-i'm curious where you heard the opposite?

Connie

Great info on various treatments for RA. I'm on Humira. I can have a flu shot even though I'm on other immune suppressant meds too. My pain levels have decreased greatly since starting Humira. When I'm sick and can't take it, I want to scream!

Sara

Hi Connie-
I know what you mean. The fatigue is also really difficult for me, and I would scream if I had the energy. I think Humira and Enbrel are very similar, but Humira is derived from Human dna, right? I'm glad it's working for you.

Liz

Hi,
I've been reading your blog regularly and am really enjoying it. I work with CreakyJoints, a nonprofit online community dedicated to helping people with arthritis live their lives to the fullest. Check us out at www.creakyjoints.org. We have produced a 12-minute video called “Another Hope: RA Infusion Therapy,” which contains introductory, non-brand specific information about infusion therapy, how it works, and its benefits. You can watch it or download it for free on our site. We are trying to get the word out about this resource, and given your latest post about the different kinds of RA treatments, I think this would be relevant for you and your readers. Would you be willing to mention it in a future post? Please email me for more details and thanks in advance for your consideration.

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